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Rob
Nijssen sits hunched over a set of scales in his homebuilt laboratory.
He's weighing out herbs, oils and powders, and combining them with the
skills of a practiced craftsman.
With
the mischievous look in his eye, he could be a gifted academic, a drug
peddler or an alchemist. He is, in fact, a man trying to save his son
from a lifetime of pain and suffering. And Rob believes he's done just
that.
Five
years ago his son, Frederick, was diagnosed with autism. The doctors
told him there was no cure and warned him to prepare for a lifetime of
struggle. But he refused to give up. As a fervent believer in the power
of natural remedies, he decided to develop his own autism treatment.
In
a story that closely mirrors Lorenzo's Oil, doctors will soon begin
testing Rob's autism treatment in a major clinical trial. It's a story
that will give hope to the parents of tens of thousands of autistic
children across the UK.
"Most
people think that autism is a mental disease," says Rob. "But I believe
that it's caused by parasites which take root in the body because of a
weakened immune system."
"My
treatment works by clearing out all of the toxins from the body,
killing off invading microbes, and then strengthening the immune
system. It works with the body to help it heal itself. Once the body is
healed, then the brain can start to recover."
Although
it's still very early days, some doctors believe that Rob may have
stumbled upon a new and potentially powerful way of helping the
autistic.
Dr
Robert Trossel, a consultant at the Preventative Medical Centre in
London, says: "We've seen dramatic improvements in some of our
patients. Some began responding within days."
Like
many children who later go on to develop autism, Frederick was a
precocious and gifted child. He was into everything. His bright
blue-grey eyes followed his parents everywhere. His face constantly
beamed happiness and joy.
"In
so many ways he was the perfect child," says Rob. "He was always happy.
He was very social and always clowning around. Frederick had no serious
illnesses. If anything, he was healthier than normal."
But
all that changed dramatically after Frederick received his MMR jab when
he was 30 months old. His health quickly deteriorated and it seemed to
Rob that he never quite managed to shake off the after-effects of the
vaccination.
Persistent
colds and ear infections were the first signs that something was wrong.
Then his skin erupted with rashes and he developed terrible stomach
problems. For week after week, Frederick's health would spiral
downwards, only to partially recover again, before weakening once more.
"There's
nothing worse than having a child with health problems," says Rob. "You
want to take on their pain yourself so that you can stop their
suffering. You feel it more than they do."
Rob
soon began suspecting that his son was suffering from something far
worse than a persistent head cold, but the doctors dismissed his fears.
And as the weeks passed, Rob became increasingly alarmed. Frederick -
once an irrepressible bundle of joy - began withdrawing into himself.
He became increasingly short-tempered and would often fly into a rage
at the slightest provocation. His grasp of speech, which once marked
him out as a gifted child, evaporated. He smiled rarely and began
endlessly repeating the same things over and over again.
One
day, when the young family was at the beach, it dawned on Rob that
Frederick was seriously ill. Frederick repeatedly picked up a stone,
placed it in a plastic bucket before removing it again. He endlessly
repeated this obsessive act, over and over again. Each time his parents
tried to distract him, he would become confused, angry and upset.
Soon afterwards, Frederick was referred to a specialist and diagnosed with autism.
"The
paediatrician was casual about it," says Rob. "He told us there were no
cures or effective treatments available. He simply warned us that we
faced a lifetime of struggle. And that was it."
"In that moment I decided I'd do my best to try and develop a cure for my son."
Rob
had heard of the story of Lorenzo's Oil and was determined to achieve
something similar for autism. And the parallels are remarkable.
As
you will recall, Lorenzo was a six-year-old child diagnosed with
adrenoleukodystrophy (ALD), a rare genetic disorder that affects the
nervous system of boys who have the gene. They are in perfect health
until they are five or six, when the first symptoms appear. In the
space of a few months, ALD robs its victims of their sight, hearing,
and the ability to walk and to swallow. Within two years of diagnosis,
the child is usually dead.
But
Lorenzo's parents refused to give up and spent years developing a
treatment based upon the essential oils found in olive and rapeseed.
The doctors scoffed but Lorenzo survived. His parents were eventually
proved right when the medical establishment was forced to accept that
the oils could indeed stave off the disease.
Like
Lorenzo's parent's, Rob had the resources needed to spend several years
developing the treatment. He ran a company selling earth moving
equipment outside the Dutch city of Eindhoven. With a turnover of £8
million a year, Rob knew he at least had the money - if not the time -
to develop the treatment.
Rob
moved quickly. He spent 90 hours a week studying autism. He became a
regular fixture at scientific conferences around the world and marked
himself out by constantly badgering the experts. As a trained engineer
he brought a refreshingly different approach to treating autism.
Instead of simply trying to cope with the symptoms, he decided to
ferret out the root causes of the disease and treat those instead. As a
result of his research, Rob became convinced that autism results from a
malfunctioning immune system. Correct this, he thought, and the body
will begin to recover. It's a theory that is still hotly contested by
the experts.
Despite his own experiences with the MMR vaccine, he dismisses its links with autism.
"MMR
doesn't cause autism but it may trigger it," claims Rob. "The real
cause is a weakened immune system. Once your immune system begins to
fail then the whole body becomes weaker and weaker. It becomes
colonised by bacteria, fungi and viruses. If that happens, is it any
surprise that the brain and nervous system begins to collapse?"
Rob's
highly unorthodox treatment works by bolstering the immune system. It
uses a combination of natural remedies, herbs, essential oils, honey,
probiotics (or ‘friendly' bacteria), as well as vitamins and minerals.
They are all given in a precise sequence to first cleanse the body,
kill off invading parasites, and then to fortify the immune system.
Clearly the treatment is unlikely to do any harm but can it do any good?
Rob is convinced that the treatment works - and so do many parents who've used it on their children.
Within
months of beginning treatment, Rob claims his son began making
progress. First of all his digestion improved. Then his moods became
more stable and he began sleeping better and regaining his strength.
Slowly, step by step, Rob and Anita's son is returning to them
Frederick's
improving health was soon noticed by other parents at his special needs
school in Weert, 100 miles to the south west of Amsterdam. Word spread
rapidly from parent to parent and through the Internet. It wasn't long
before Rob was asked to treat other children and has now begun
supplying parents across Europe via his website.
John
Hufkens is one of the recent converts. He claims his 13-year-old
daughter, Lianne, is making rapid progress after using Rob's treatment
for six months. Crucially for him, his daughter is starting to express
and discuss her emotions. One of the main features of autism is its
destruction of the emotional bond between sufferers and other people.
The autistic often feel that they are the only ones in the world who
are fully alive and conscious. In their world, people and animals are
no different to objects such as tables and chairs. But in Lianne's case
this emotional connection is returning, says her father.
When
we meet, Lianne appears to be a typical 13-year-old girl. She's bright,
bubbly and keen to try out her English. Like any other 13-year-old she
alternates between childhood curiosity and adolescent shyness.
"I
can sleep better now," says Lianne. "I feel different to before but I
can't say in what way. I'm less anxious. I used to be allergic to
cheese, butter and sugar but now I can eat them. I like them."
Such
apparently small things as stomaching normal food and being able to
understand and express emotions such as fear and anxiety are hugely
significant changes, says her father.
"She's
genuinely making progress," he says. "She now realises that she's part
of a group not just an isolated individual. I hope that one day she'll
be able to live on her own, have a job and a relationship with a man."
Word
of Rob's treatment has now spread to Britain, where it's being used by
Dr Robert Trossel, a consultant at the Preventative Medical Centre in
London. Dr Trossel has a lifelong interest in alternative therapies and
often prefers them to more orthodox treatments. But even he was
initially sceptical of the claims being made for Rob's autism
treatment. Now, after prescribing it for a handful of patients, he says
he's impressed.
"It
doesn't work for everyone but when it does it's very powerful," says Dr
Trossel. "Several patients have responded within days.
"Patients
sleep better, they're better emotionally balanced, less anxious, have
fewer bowel problems, and can concentrate better. In my experience it's
not a miracle cure. The patients have a lot of catching up to do. But
the important thing is that they have started learning again."
Despite the
involvement of Dr Trossel, the new treatment is still regarded as
highly speculative. For it to move towards the mainstream, solid
scientific proof is needed. The testimonies provided by the numerous
parents who've used the treatment on their autistic children are not
enough. Even the evidence provided by practicing doctors such as
Trossel in London is insufficient to sway the medical establishment.
After all, many of Rob's claims go against the current evidence
Dr
Tony Charman, of the Institute of Child Health in London, sums up the
attitude of the medical establishment: "The claims for alternative
treatments for autism are generally not borne out in the long run.
Parents often think that their child has improved but that's frequently
down to their perception. When you look at it scientifically then the
claims prove to be incorrect. This is unlikely to another Lorenzo's Oil
story.
But
Rob is hopeful that he'll soon have the proof he needs. Dr Ton Haagen,
a paediatrician at the Viecurie Medical Centre, one of the Nederland's
main hospitals, will soon begin testing the new treatment. Clinical
trials are due to begin within months at the hospital.
"I
think that Rob's view that autism results from immune system problems
is right," says Dr Haagen. "I think his way of treating these children
is correct too. We now want to assess scientifically whether Rob's
supplements are useful in treating autism.
One
way or the other, definitive proof is unlikely to be available for
several more years. But Rob is convinced that the treatment is helping
his son. Ironically if it does work, like Lorenzo's Oil, it will be
most effective in treating children in the earliest stages of the
disease. Frederick, who is now eight, has many, many lost years to make
up.
"I
don't expect my son to be a professor," says Rob. "I want him to be
happy and content in his own way. I want him to be accepted by society
for what he is and on his own terms."
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